Susan Komen Should Use Planned Parenthood Debacle to Reevaluate its Responsibilities to Women's Health

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Susan Komen, Planned Parenthood

Susan Komen Should Use Planned Parenthood Debacle to Reevaluate its Responsibilities to Women's Health

By now, you've heard the story: Susan G. Komen for The Cure, a once well-regarded breast cancer awareness and research organization, became a pariah seemingly overnight when it decided to stop funding breast cancer screening to low-income women through Planned Parenthood. The decision was a debacle. And now you might think twice about wearing that little pink ribbon on your lapel. But the organization has reversed its decision and let go of the executive behind that decision, and given the public outcry over this fiasco, it's not likely to mess with Planned Parenthood ever again.

Lost in the condemnation over Komen's unfortunate mistake is a conversation about the organization's broader goals and responsibilities -- the conversation about its complicated role in women's health.

For far too long, medicine and public health were dominated by men. When the Komen foundation was founded in 1982, for example, fewer than 1 in 6 American doctors was a woman. It's almost impossible to overstate the impact that that gender gap had on both the way the health community thought about women's diseases and the way healthcare was delivered to women. Diseases like breast cancer, cervical cancer, and complications of pregnancy were seen as "less important" because they only affected women. What's more, the deeper meanings, symbolism, and psychosocial impacts of these diseases were completely ignored.

That's the historical context within which we have to understand the importance of this organization. It shined a spotlight squarely on women's health and helped to kick-start a broader conversation. Growing into a multi-billion dollar enterprise, it painted everything with its trademark pink -- from Pink Grapefruit Tic-Tacs to the cleats of NFL football players. Komen generated needed awareness about the importance of early detection, and raised millions of dollars to fund important breast cancer research.

But Komen was so successful that it made breast cancer synonymous with women's health, and that's a problem.

Why? Because although a serious disease, in terms of morbidity and mortality, breast cancer isn't the most important disease among women. Women who die of cancer, for example, are more likely to die of lung cancer. In fact, lung cancer takes nearly twice as many women's lives as breast cancer does. And the #1 killer of women isn't even cancer, it's heart disease, which claims the lives of nearly six times as many women as breast cancer. And the leading cause of disability among women? That's depression. Again, not breast cancer.

The problem with organizations like Komen is that their scope doesn't scale with their success. The organization that started as one woman's goal to raise awareness and funds for the fight against the disease that took her sister's life has transformed, like it or not, into the flag bearer for women's health. 

But rather than adapt to its de facto role, Komen has remained myopically focused on one, and only one disease. Therefore, while its expert marketing has been a boon for breast cancer awareness, it has had the detrimental effect of redefining the women's health conversation around those diseases, like breast cancer, that are unique to women, rather than those diseases from which women suffer most --relegating the conversation about women's health to a few exclusively female body parts.

Why should "women's health" include diseases that also affect men? Because diseases like heart disease and depression have different causes and consequences among women. What's worse, we know substantially less about how these diseases work, what brings them about, their downstream effects, or how to treat them in women. And organizations dedicated to raising awareness and funds to address these crucial issues find themselves consistently overshadowed by a giant pink balloon --because of Komen's marketing success, they have a hard time branding themselves as the legitimate women's health initiatives they really are.

As Komen performs the requisite housecleaning that should ensue after a debacle of this magnitude, now is the ideal time to remind the organization that its responsibilities to women's health extend beyond breast cancer. Otherwise, the women's health agenda will have found itself suffocated, choked by that ubiquitous pink ribbon.

Photo Credit: Fifth World Art

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Abdulrahman El-Sayed

Dr. Abdulrahman M El-Sayed is a social epidemiologist and physician-in-training at Columbia University. He is also a Fellow at Demos, a non-parti...

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Lev Sviridov

Abdul, great piece and wonderfully used opportunity to draw the attention to the issue of depression and mental health. The issue of donor intent presented by Jeanne Vickery is an important one and obstructed by the lack of actual review of grants within the organization and the political hooplah around the decision on the funding. I do hope that the foundation invests more in breast cancer prevention through Planned Parenthood and other organizations and that there is greater interest from other philanthropic organizations to address the much needed void in female depression in a way that serves the best interests of women's health and is consistent with donor intent. Thank you for raising the red flags!

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Abdul,

great piece and wonderfully used opportunity to draw the attention to the issue of depression and mental health. The issue of donor intent presented by Jeanne Vickery is an important one and obstructed by the lack of actual review of grants within the organization and the political hooplah around the decision on the funding.

I do hope that the foundation invests more in breast cancer prevention through Planned Parenthood and other organizations and that there is greater interest from other philanthropic organizations to address the much needed void in female depression in a way that serves the best interests of women's health and is consistent with donor intent.

Thank you for raising the red flags!

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Abdulrahman, in my opinion, the media- left and right-have complicated the conversation surrounding the mission of the Komen foundation based on the poor decision of one of their now former sr. staff members.

The history of the Komen foundation is it was founded as a result of the death of a family member and the discovery that, in comparison to research on men's health issues, very little was spent on breast cancer research, detection, and prevention.

Since the inception of the Komen foundation and like organizations, a diagnosis of breast cancer is no longer a death sentence. In fact, the death rate of a breast cancer diagnosis has dropped dramatically.

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  • Jeanne Vickery 3 months ago If the Komen foundation were to �...

If the Komen foundation were to 'broaden their scope' to be inclusive of all women's health issues, it would take away from their core mission of fighting breast cancer. There are other campaigns for the other diseases that afflict women - Wear Red to increase awareness and research for heart disease in women, NAMI has numerous campaigns for depression, etc.

As a woman who has lost family members on both sides to breast cancer (note, to date, no one in my family has survived), I think the Koman foundation has their responsibilities clearly mapped out. To extend beyond breast cancer awareness and research would be over-reaching.

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For the record, the Komen policy was put in place to ensure funding only goes to legitimate organizations that support Komen's cause: eradicating breast cancer. Planned Parenthood does not even do mammograms & has 111 criminal/ 23 felony charges pending. This is why they do not qualify for grants.

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  • Jeanne Vickery 3 months ago Planned Parenthood has never stated...

Planned Parenthood has never stated they perform mammograms. They have always stated they provide referrals for mammograms. They do state that they perform breast exams which are different than mammograms.

The Komen policy change accommodates current funding for breast cancer related services Planned Parenthood offers until the charges are either founded or dismissed. It does not guarantee future funding. In summary, the private non-profit, has decided Planned Parenthood qualifies for their existing grants and changed their policy to reflect this decision.

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  • Katherine Stefan 3 months ago Well put Jeanne. Both organizations...

Well put Jeanne. Both organizations have missions they are committed to and both have accountability to those missions and the donors who make achievement possible. This whole story has been completely misrepresented in the media, especially in social media.

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  • Jeanne Vickery 3 months ago And since both organizations are pr...

And since both organizations are private organizations, if the donors don't like how the money is distributed, the donors do not have to donate. Both sides of the debate have used the media, and social media, to advance their message.

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